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Wednesday, 23 December 2015

Just Showing Off :)

Just showing off a tag I made for another website where I have an account ... :)


Merry Christmas

Christmas? ... Hmm, well for a lot of people it's a happy, exciting time of year filled with love, family and peace .... For some, however, it can be a very painful time of year filled with heartache, grief and loneliness .... I remember when I was a child, Christmas was magical, my parents made sure of that :) .... Now, after all these years, being widowed and after a turbulent and quite traumatic life experiences, yes it still holds some joy but it's not the same for me ... I'm very grateful for what I have, I don't really get too excited over Christmas, but it's a time of year now where I'm glad I can relax after the mad rush is finished... My ideal Christmas would be spent with family, somewhere like a quiet beach in the warm sunshine, not very traditional but something I would like to do at some point.  I've not updated in a short time, mainly because of the Christmas rush at work, mum still is very poorly, she's home but still unwell and I've had several appointments in terms of my health ... I seem to be baffling my doctor right now, my blood test results came back abnormal, it's a possibility the sarcoidosis isn't under control as well as it was before my medication was lowered .... I'm showing inflammatory markers again, suggesting it's flaring up ... It certainly feels that way body wise, I'm very sore and in pain all the time, he's not sure whether to put it down to Sarcoid, Fibromyalgia or a combination of the two but upshot for now is to increase the medication for the fibro .... The whole mix though is not helping, so stress wise, it's a bit of a trying time right now.  I feel like changes are about to made beyond my control, not because I want them to happen, but there's not much I can really do about it if they do ... I think it will be a mistake on the part of who I am referring to, but I can't and won't ever advise them they shouldn't do it even if I think they are making a huge error of judgment .... I think they will regret it .... We truly as a whole don't realize how important our health is .... Once it fails, it has not only an impact on us but our whole family and loved ones too ... It's so important to be in good health, I cannot stress that enough and if you are healthy, then you are very blessed in that way .... Chronic illness in particular can be a very difficult battle, we aren't considered as being in a life threatening state of health, but we aren't well either ... People do die from Sarcoidosis, it's one of those diseases that is unheard of, then once diagnosed, can be difficult to treat and monitor as it's not considered to be a serious enough condition, until of course, it's too late ... Just my thoughts, but here's a fact ... I've met friends online only to lose them to this disease, it hurts to lose them, it's also very frightening ... Just knowing that there's a chance I'm not in remission any more is frightening ... Sarcoidosis can and does spread anywhere, it is most commonly found in the lungs, lymph nodes, skin, eyes but it literally can spread anywhere and has been located in the liver, kidneys, bones and joints, salivary glands, heart and brain .... We need tighter monitoring, more frequent checks and tests to ensure that doesn't happen and if it does, it's dealt with as swift as possible to avoid risk of death ... So far it has been found in my lungs, lymph nodes, skin, eyes, parotid and submandibular glands, bones and joints ... So for now, that's that .... Christmas Eve is almost here so with that in mind...............

May you all be blessed this Christmas, I wish you all peace, good health, happiness and love ... I will probably update after Christmas now as things are about to get quite busy again .... Have a very Happy Christmas!  Thank you for calling by and reading my posts. 







Wednesday, 16 December 2015

Hello Again!

My apologies for not posting in a few days, things have been very busy here with the build up to Christmas next week, can't believe it's almost upon us and I've done absolutely nothing at all yet!! ... My mum is in hospital very poorly and coupled with her being sick, me going to work and trying to look after my family, it has proven very busy and rather tiring also.  We had our Christmas lunch at work yesterday and it really was lovely.  I'm very fortunate to work with such nice people and it was a day for making happy memories .... Got some fab pictures on my phone! Ok, I will be getting more into some health talk as time goes by, touching the surface right now in this blog as this is more about the crazy Christmas rush! So far my diagnoses over the years are Pernicious Anaemia, Folate Anaemia, Iron Deficiency Anaemia, Sarcoidosis, Vitamin D Deficiency and the most recent being high cholesterol after a T.I.A and now Fibromyalgia .... It is quite the package all in all, will discuss the ins and outs another time, but for now, I hope you are as well as you can be, I hope the run up to Christmas is a happy and exciting time for you, may you be blessed with health, happiness, peace and love .... Will update again soon, I finish work on the 18th of December so I'm hoping to have some more time to devote to blogging .... Until then, love and hugs xxx






Sunday, 13 December 2015

Faces Of Sarcoidosis, all credit to Lee-Ann Bruce, my sarcoidosis sister and an amazing warrior!


Faces of Sarcoidosis, these are my friends, my family, people who share my journey through this disease.  I'm so proud of them all, they battle every second of every day.
We NEED a cure!



Welcome!

A very warm welcome to my blogspot page.  I will be adding to this as much as I possibly can with posts about my life, tags I make and a subject very close to my heart - Sarcoidosis, a rare and potentially fatal disease I have been diagnosed with.  I hope you enjoy my future posts, I have so much to blog about and look forward to doing so.  Thank you for visiting, please call again soon!  Hugs and love, Gina xx