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Sunday, 27 March 2016

Anaterium!

Yep, as you may or may not have noticed, I have added a link to my title bar ... It's headed Anaterium ... If, like me, you are a keen tagger, love finding psp tubes and scrap kits at a reasonable price then take a look ... Anna's work is absolutely beautiful ... I used her Spring Dreams scrap kit not too long ago and the end result tag was amazing and has received the most likes on my Glitter Graphics and Facebook accounts ... Definitely check her store out!  You won't be disappointed!! 

Crazy Week! BUT I made another tag LOL

First of all, a very Happy Easter to everyone and thank you for calling by!  It has been one bastard of a week all in all ... Not that I mean to complain, it's not all bad but it's had it's moments ... It started out smoothly then went to shit basically .... Barnet General hospital are officially the bane of my very existence, offering not only my sick mum a disgracefully poor care service, but in the process, managing to stress me out at work and upset my family as a whole .... Some doctor who didn't know mum, only spent a matter of minutes with her, took it upon herself to phone me while I was at work and literally argue the toss with me, insisting my mum has dementia .... After a matter of minutes!! ... Absolutely bloody disgusting!  Yes my mum is in her 80's, yes she is forgetful but she's sharp as a tack still ... She's not stupid and she's certainly NOT got dementia .... You can have a lucid and flowing conversation with her ... She has full mental capacity, yet this trout of a doctor was arguing with me otherwise ... Highly unprofessional and insensitive to say the least.  I couldn't get the bloody woman off the phone quick enough after that .... First of all, an MRI is required, many tests also and months of assessments to fully and properly diagnose dementia .... Plus, you do not, I repeat DO NOT contact the next of kin over the phone at work and argue with them, insistent that your patient that you don't know, haven't spent hardly any time with, has dementia, then provide them with that firm diagnosis over the bloody phone!  Yes I am complaining to Barnet General about this doctor in A.A.U .... Vile woman! .... So that was just the beginning .... Then, I lost my bank card, I remember clearly my son handing it back to me after he withdrew some money, what I actually did with the card once it was handed back to me is a complete and total blur .... I cannot for the life of me remember what I did with it and I still can't find it .... What a twit!  So, had to order a new card and stop the old one ... I'm sure one day I will see the funny side but at the moment, I'm very concerned that I simply can't remember things, especially something as vital as storing cards etc ..... My short term memory is a disgrace to be honest ... I even forget stuff at work that my friend asks me to try and remember for her .... It's not that it's not important to me, it is very important ... I just cannot retain it at all .... I think sometimes people think I just don't care, that's certainly not the case though.  I know my friend at work knows I'm a divvy head LOL .... She's very tolerant and understanding .... Something I need from people I'm close to.  

Apart from that everything is superb to be honest ... Still blissfully happy and enjoying life as best I can .... Tony has made such a difference, I didn't know how unhappy I was until he came along .... Such an amazing man.... Not letting this one go :) ... He's wonderful

As far as the sarcoidosis is going, I'm still symptomatic but you know what? ... I simply can't be bothered to waste my precious time going over the symptoms with my doctor to be told it's something else! Yes they do seem to want to put the symptoms down to anything but sarcoidosis LOL ... I've no idea why .... I just smile sweetly, roll my eyes and think fuck it LOL .... This evening the numbness has returned in the left side of my face, no headache though which is good, my hearing in my left ear is definitely on the blink, my eyes are the same, still swollen salivary glands and lymph nodes but I now have a sore throat and a cold which my eldest son has decided to generously share LOL .... Took my dog, Eddie to the Groomer a couple of days ago, managed to buy some doggy toothpaste for him too which I'm pleased about ... Also bought him some fragrance for when I bath him in between the full pampers at Mutts Cuts .... They're really good in there, lovely staff and the dogs all run around happily and play once they've been pampered .... Eddie gets on so well with other dogs and people, I'm so proud of him ... Although he did piss all up their door as we left which I was rather red faced about, they saw the funny side thankfully! :) 

Had a lovely surprise too yesterday, an old friend got in touch after finding me on Facebook! Was so wonderful to see him in the online sense ... After all these years .... Such a lovely surprise .... Took me back to when I was 18 again .... Life was great back then, much more simple and fun filled in the sense, I was young, settled down at a young age, but happy so it didn't matter ... Everything was just easier, I had youth and health on my side ... Different story now but we have to try and make the very best of what we have .... It's not easy though so I get that side of it too ... Much easier said than done .... But I've learned a lot and still continue to learn .... I know that when something truly terrible and traumatic happens to you, you find out who your real friends and family are .... Life teaches you to filter out the crap pretty much ... You know who is real and who isn't ... I keep my circle small, best way for me ... I never let anyone back in who has hurt me or my kids in the past, I don't even entertain the idea of communication with them unless they really want to push me for a fuck off and when you get there fuck off again response.  

Well if you made it this far you deserve a medal LOL ... Thank you so much for calling by, for reading my ramblings and if you do pop by regularly, thank you!  It does mean a lot to me :) ... For anyone calling by with sarcoidosis, if you are struggling, if you feel alone, please believe me, I know how hard it can be .... I've found tremendous support and family on Facebook, if you do need anything at all in terms of support, then please let me know, I will gladly provide you with some helpful links to some amazing support groups ... Just look after you, if no one believes you when you say you are sick, just know it's not all in your head .... It is a real disease, showing up on X Rays, CT Scans and MRI with contrast to name a few, it is also potentially fatal, so despite any negativity you may encounter from those around you, please ensure for your own health and quality of life, that you have a superb doctor/specialist for whichever area the sarcoid is found .... As you probably already know, it can be found literally anywhere ... It can be exhausting keeping up with hospital appointments too, seeing one consultant for one thing and one for another, you feel wiped out and then on top of that you have the symptoms and also the treatment/medications themselves which aren't pleasant and can potentially carry some nasty side effects.  

BUT ... You don't have to face it alone .... There's some amazing support out there!

Ok, time to close with ... Yep, another tag I just finished ... This is titled Spring Fever and is awaiting approval on my Glitter Graphics account .... Please take care, have a wonderful Easter and enjoy your chocolate!  If you're spending time with family, have a lovely and peaceful day and I hope you are as pain free as you can possibly be and living life to the best you can!

Hugs, Gina xxx


Sunday, 20 March 2016

Flare Up But I Finished A Tag!

Yep, I'm having a flare up ... My glands are up, my jaw hurts with the swelling and so does my neck, my right leg has been nothing short of unbearable today, along with pain overall...  I managed to walk my dog tonight, just about though .... I'm really feeling it right now ... I'm grumpy, bloated, sore and in pain, so exhausted and wiped out and having one hot flush after the other ... ARGH!! LOL... Yesterday was awful, all in all the weekend was not one I care to look back on memory wise ... Was so glad that Spurs beat Bournemouth today though so that cheered me up a little bit :) .... I hope everyone's doing good, if you're a sarkie reading this then I do hope this finds you as pain free as possible .... I'm trying to rest as much as I can, I'm off to bed very soon as the exhaustion is really pulling me down now and I'm whomped as a bucket of whomped things! Only a few more days at work before the Easter break so I feel I should go in even if I look like I have a gob full of marshmallows! ... I wish you all well, lots of pain free and healthy times ahead .... I finished a spring tag too so here it is .... I've not forgotten about the other blogs I promised, I will do them in due course but for now I'll leave you all with this and say goodnight, sweet dreams and have a great week! 

See you soon!
Hugs
xxx


Saturday, 19 March 2016

Just Happy! :)

Sorry I've not been updating as much as I'd like to, I'm just living life, being happy and feeling like I'm the luckiest most blessed lady alive!  I'm very much looking forward to tomorrow, things are just terrific ... Yeah the Sarcoidosis is giving me grief, I'm trying to accept that I'm always going to be in pain ... It is hard, especially when I wake in the morning knowing I have a whole day to face in pain again ... I don't mean that in an ungrateful way as I know I could be much worse off, I also could be facing this stuff alone .... I love my job, I just find it hard at times .... But life on the whole is wonderful .... I will update again over the weekend .... I hope everyone's ok ... Please take care and have a wonderful weekend ... Will be back soon!!

Saturday, 12 March 2016

Ugh ... Sleep Is Eluding Me Tonight!

Yep, I'm having one of those nights whereby sleep has given me the royal finger .... I honestly thought I would crash out as it has been a busy week, I'm bound to have forgotten something this week knowing me .... I'm just catching up over on my Glitter Graphics account, almost there I think ... Got a lot on my mind tonight .... Have tried to distract myself by finishing off a tag I have been working on when I can for the past few days in between work and home life ... Then trying to catch up with requests, I can honestly say, hand on heart I would go nuts without Photoshop and my hobby .... It does help a lot ... It's also lovely when people like what you do ... Makes it all so worthwhile .... Oh well, while I'm up I may as well make some tea and wait for the washing machine to finish .... I must be bonkers lol ... It's almost 4:50am and I'm wide awake, I napped earlier but just can't settle properly .... I don't like stuff like this playing on my mind at all ... It's something that I personally feel could be easily avoided and isn't necessary .... So while I'm here I guess I should show off my latest tag I finished ... Again a St Patrick's Day theme and yep you guessed, it wouldn't be right or proper not to use a beautiful splash of Keith Garvey genius! :) ... 

If you're sleeping well, I'm jealous LOL ... Goodnight, I will try and sleep, just not right now .... Here's my latest!


Wednesday, 9 March 2016

Quick Update

Just letting you all know that everything is still great, I'm enjoying life and feeling very happy thanks to Tony..... I had an interesting meeting with my doctor earlier today, I managed to get something I felt I needed to help with a problem that keeps occurring ... We got on to the talk about my C and S protein deficiency and the Stroke Clinic requesting a re-test ... That's all now arranged and also I had no idea but my regular doctor phoned a haematologist based at our local hospital to discuss my blood and there's talk of me being referred to this particular haematologist for further investigation .... My blood work has showed discrepancies for years so I'm relieved that a referral is now in the pipeline .... The Sarcoidosis is still being an arsehole but I just live with it and thank it as if it wasn't for it, I wouldn't have met Tony so there's a massive plus side to this disease for me .... I still haven't forgotten about continuing from where we left off in a previous blog, that will get typed up and published at some point ... For now, I'm happy focussing on the positives in my life, the wonderful changes I'm blessed to be a part of and embrace ... Oh, I also had some time to make a new tag,  a St Patrick's Day one and yep, you guessed it! I'm using the beautiful art work of Keith Garvey! My all time favourite artist ... Hint hint for this year's Christmas list!! :) I'd like some door skins and his signed prints and anything else you can grab for me .... Thanks my Santas!! :) 

I do hope you are all well, I hope you're even a fraction as happy as me right now ... For any of my Sarc family who are reading this, I hope you are as well as you can be, for any new sarc friends who call by and are looking for amazing and supportive friends and trying to gather up any info you can, there's some incredibly supportive groups over on Facebook ... The people in them are my family, they are who I turn to when I have worries and concerns about this illness .... They're all amazing, they're so kind and understanding and you'll be made most welcome and part of the family too.

As far as my life goes, I couldn't be happier .... I'm living, laughing, loving .... I never thought I'd ever be in such a good place after being in such a bad one ... Sending my love to you all, please look after yourselves and thank you so much for calling by and reading my blogs ... This BlogSpot account is still fairly new, I've not been on here for very long and I am hoping that this will somehow generate some positivity within the Sarcoidosis community and also those who share in my passion for art, especially the wonderful Keith Garvey!

Speaking of Mr Garvey ... Here's my latest :) 




Saturday, 5 March 2016

Life Changes For The Better

Well, I honestly, never in a million years thought I would ever say this, but Gina has officially got herself a wonderful man!! Yeah I know, shocker huh?! ... We've known each other for a while and everything just grew and developed between us .... He's completely changed my life for the better, I can't remember the last time I've been so blissfully happy .... I'm so blessed to know him, to be all his and to be loved by him .... I'm loving life, loving Tony (that's his name) and loving life with Tony .... Things just couldn't be better! I'm so happy! So.... If you were wondering where I've been, that's why I've not been on here much .... However, I have had time to make some alterations, including a brand spanking new header for this page ... I'm very pleased with it ... Also have updated my Glitter Graphics page and update my Facebook regularly .... I haven't forgotten about updating here, I will continue to do so and also continue where we left off from last time ... I just wanted to share in my wonderful news and my happiness .... Pics of us together to follow!! Oh and I have been making some more tags ... Here's one which you will also find over on my GG page too:-



Take care all of you, I wish you all the love, peace and good health there is in this world... Thank you for checking in regularly and please call again soon!

Mwah!!

Big hugs,
Gina
xXx