So..... I'm sat here in an almost dark room, it's very peaceful, my eldest son is out partying and my youngest is away for a week with a friend ... The only sounds are my little Eddie dog snoring beside me and the heating clicking on and off .... It's rather cold outside, quite damp actually and my candles are shedding a dancing glimmer of orange and yellow lights onto the wall in front of me ... My computer desk/area is actually under my stairs LOL, just call me Harry Potter as I spend most of my free down time here :) ... I've spent over a week now in possibly the worse flare up I can remember .... The pain has been unbearable, I feel like I have been punched all over, the emotional draining of just everything piling on top of me has seen me decline also .... Hence what I am about to say...........
Whether you make a conscious decision to try and understand the illnesses I have, or not, please step back, take a few moments and think about what you say to not only me, but to anyone with chronic illness and pain. No I don't mean to go on about it, yes I know this will pass but here are some of the things I have actually had said to me while being poorly........
1) What happened to the really cool person you used to be?
2) Once again you couldn't do something and get it right for once
3) I don't care if you have sarcoidosis, it's not that bad
4) You're fucking useless
5) It's all your fault
6) You really need to get a better job
7) You make no effort
8) You shouldn't be taking those pills, the doctor is wrong
9) You should go to the gym
10) No one cares
Just some of the things said to me recently .... Nice huh? Look, I appreciate that not everyone will understand and I totally and completely understand how hard it must be for anyone healthy to understand someone like myself .... However, tearing a person to pieces while they're down is not helpful, it's counter productive and will not help them ultimately .... Now, I'm a tough fucker, but yeah, some of that is pretty nasty .... I know it's not true, however, it is clear that it is someone else's truth and their reality .... I've had some pretty nasty things said to me lately, at a time when I could do with some kindness from people who I thought were friends but I'm not so sure any more .... With things the way they are with my mum, my illness being a bit too comfortable and pulling me down, it would have been a lot nicer and more helpful if certain things had not been said to me, even if the person feels completely justified in their opinion of me ... It's not very nice for me being on the receiving end and I wonder if you would feel the same way I do, if the tables were turned and you were on the receiving end?
So ..... Have a think ..... Does it really need to be said? Do you want to tear that person down even more than they already are? Would you like it?
Now .... On a far more positive note, here are some of the latest tags I've made ... I hope you enjoy them and thank you for calling by! Love always, Gina xoxoxoxoxoxo